Dear God
It's me, Ben this time
I am going to need help with this mountain I have to climb
I am going to talk and you are going to listen
Take my daughter to heaven where I know she will glisten
You couldn't have needed her more than I
Why did you take her to the sky
I still had so much more to teach her
I am sure that your reasons are pure
One thing I did teach her is to never give up on me
I can't wait to get to heaven to teach her the alphabet A to Z
You can take her soul but you can't take her pride
She is your little angel now that she has died
How could you do this to any woman or man
I guess it's all a part of your mysterious plan
Was I a bad father, was I a bad dad
Did I take advantage of the time we had
I always knew there was something special about her
Everything happened so fast, it was all a blur
I don't know what song she would have chosen for her father/daughter wedding dance
You took her to heaven before we even got the chance
My heart will never be the same; there will always be a scar
The only remedy now is to look up at her star
I know for a fact she will outshine every star within light years
I can see her wherever she is, even through tears
God, I trust you to take care of her until I get there
There is nobody else I would trust with her care
So, give her a kiss from me and tell her everything will be OK
I will get there in time to laugh and play
By: Remi's Daddy
I'll love you forever.
I'll like you for always.
As long as I'm living, my baby you'll be (Love You Forever by Robert Munsch)
Amy,
ReplyDeleteI hope you see this message. Amy I read your comments on my blog (upanddowntheskislope.blogspot.com)and I wanted to write to you. I am glad you found us (I was hoping that our story is reaching others and apparently it is).
First off, Remi was (and is) beautiful. I am heartbroken for you and your family. As you know since you have read my Abby's carepages we had quite a journey as well. While Abby did not have Hirschsprung’s disease, I am familar with it and she did have some instestinal issues and surgeries.
As I read through your blog I noticed something our babies had in common - their fighting ability. I am not sure if you knew Remi had Down Syndrome before she was born and things happened so quickly for you all. We did not know but had a pretty good idea based onher heart defect (it is very common in babies with Downs). My husband and I truely believe that Abby was able to fight because she had DS. We think she defied odds over and over and amazed doctors and nurses. Maybe she was just a very strong baby, but maybe it was because she was extra special :).
So many of your comments in the blog are the same words my husband and I said. As sad as I am we no longer have our Abby I am comforted by her ability to bring so many people together and to inspire us and give us strength. It sounds like Remi did the same.
Your R Angel project is awesome. You are amazing parents and are bringing help to so many. Those days and nights in the PICU are hard and you are helping. That is great.
And Ben it appears you and my husband (Tim) have writing in common. What lovely poems.
Please continue to keep in contact. I'll be praying for you all and thinking of Remi when I think of Abby.
Take care,
Jennifer