Sunday, April 5, 2009
Today we had another meeting of the minds. I had every doctor present their case on their specialty. As you can imagine the heart doctor blamed the kidneys and the kidney doctor blamed the heart. We have many vicious cycles that make one huge vicious cycle. When the meeting was over it was apparent that dialysis was not the option for us. The answer to your question why is...dialysis will not cure the kidney, they may not be able to get a big enough dialysis needle into her swollen body, if they did get that big of a needle into her artery it would take to much blood from the closest limb and she would lose that limb, the transport alone could kill her, and many more reasons. So as parents we had to weigh all the negatives with little to no positives and it was an easy decision.
On more positive notes. She has been weened off of the Nitric Oxide she was requiring to breath and aid in blood flow. She is also not requiring as much extra Oxygen from the ventilator. She is not requiring as many breaths per minute from the ventilator. Her color looks better. Her major vital signs look good. Like I said, I don't know what is keeping her with us. If she were to pass away I guarantee you it was not Remi giving up, failing, or quiting. It's the simple fact that no one can overcome God's will and he is giving Remi his all right now.
Keep the thoughts and prayers coming. Remember also, that there are a lot of sick people in the PICU with us and around the world. Now when I pray I always remember to be thankful for every second I have with Remi and anything else good. I felt I was only asking God to cure Remi and not thanking him for things.
I am going to try to leave you all with a song that is helping me through this like the last post with "Hey there Delilah. Todays is R Kelly's "Worlds Greatest" from the Ali soundtrack. All that know me know that I am a huge Muhammed Ali fan and those who didn't know, know now. Everything that is in that song I am or I feel.
Nephrology is the study of the kidney and that's what we are waiting for. So I think I am going to call the readers of this blog my "Nephrollowers"
Good Morrow Nephrollowers,